Saturday, August 28, 2010

Undifferentiated Connective Tissue Disorder

It has been 2 months since I was officially diagnosed with this condition. Started the medicine 2 months ago. Five months since I was hospitalized because I couldn't fight off infections. Several years since it began and all the missed tests, ignored symptoms and painful migraines began. I'm not sure how I feel about this diagnosis. I'm happy that it isn't leukemia or lymph cancer, which was in the top 5 illnesses that my oncologist was looking for. I have found that I'm not a very patient person, and one has to be with this condition. I was  am a runner and haven't been able to go for a run since April. That is one area that use to calm me down, a lot. I miss it. I have days that I feel sorry for myself, and I have to allow them. I can see how folks can become depressed with illnesses that limit activity. I can't work at school any time soon because I have no immune system to keep me healthy. I do have houses that I clean, which at the end of the day, I'm worn out. I had 23 good days with no pain, no migraines, no nausea from the medicine, no fever, no vertigo, so I know they are out there. I made the mistake of having too much fun on vacation, which threw me into a 10 day pain/migraine cycle. Today is day 1 without a migraine. I will need to pay closer attention to my body. That's it in a nutshell.
I had good news from the eye specialist this week. The disease has not attacked my eyes. I do need to go have stronger glasses made. I don't see this doctor for 6 months, or if I started seeing spots or have "blind" spots when I look around. My next appointment is on September 7 with the rheumatologist. I have so many questions for him this time.

No comments:

Post a Comment